I see other children and there is always something I envy..like maybe one child is able to feed themselves or one child is able to play with toys...but most of all if I see a child who still has these horrible seizures and can still walk and run..I am mind boggled to why madie cannot walk... oh man its killin me. Her rolling is getting incedibly good..I really have to watch her now..we remain optimistic...and when one of us feels pessimistic I tell ya,Madie will do something like roll all over the floor with giggles or amaze me with how well she tolerated her solid foods that day....or have a great therapy session or even tolerate her stander longer than usual...

Clonopin wein is going well...I just picked up disolvable wafer tabs at Target...so we do not have to break a half a pill in half..if that makes sense..I am opting to switch it to the morning and give her ZONEgran at night..switch em...hoping for less sleepiness...not so much of this early sleepiness...she still has annoying twitches here and there so at times is a little quieter...but remains in a good mood..I continue to watch her way more closely than I should with fears of moving in the wrong direction..Doctor says its to be expected gettiing off any drug....ehhhhh
OH OH!!I want to tell Austin's mom that Austin being a zombie is unacceptable..get on that phone and tell em its too much! Ohhh my heart aches hearing that..from the happy pictures of him enjoying his yum yums...lower the banzel( have never tried that one with madie so I am by no means an expert) or something! when Madie was on 100mg of Zonegran.4ml of depakote twice a day and half tab of clonopin...her eyes were rolling...we have since decreased..I was pissed..I called the nurse and said enough is enough...
*sigh*
I will jump off my soap box and say that its been pretty calm here in the vannoordennen household..Madie woke a couple times this past week in the middle of the night..once screaming and once just making her madie noises..
Hubby is leaving tomorrow to fly to Colorado to help his brother move....they are driving back to CT...I guess his brothers girlfriend decided she was "not ready" to move in with him as they planned a move to Philly...(ehhh even longer story)

Madie and I will be going to stay at grandma and grampas beach cottage in East Lyme CT bout a little over an hour from here...Ill grab a bit of groceries and we will head out...maybe get some pictures on the beach and maybe get a girlfriend to come out and join me...if not then Ill just be relaxing...:) Grandma and Grampa are on a cruise...I have been granted Keys...:)
We are also waiting for her stroller to be delivered within the next few weeks they say it should arrive...we have had everyone do their part as far as cost and we just wait for the product to arrive....Ill have pictures of this thing!
Well I guess that is all...Ill be heading to the cottage on Thursday probably and spend the weekend there...supopsed to be gorgeous weather...
And we keep on truckin......
:)