Oh this Kid...:) Blood work came back STILL elevated liver! still!!...GO FIGURE...the one drug that has been helping after over a year of drugs.... We have been instructed to go down to 2.5 mL in the Am...and keep the 3mL at night...so down by 1/2 a mL..with hopes of bad seizures not returning and her liver getting back to normal.. then two days into that...big one today..but that could be a coincidence?? ....
Can anyone tell me if taking Zonegran WITH depakote effects the liver MORE??? I SWARE I have read it but I cant for the life of me FIND the words I read! Nurse tells me that "oh no no no Zonegran is a drug that only effects Kidneys" BUT is it metabolized in the liver and excreted thru Kidneys?
I still stand my ground in IF we can get madie to gain some weight she can get the right dose of Depakote that she needs and when we can finally get her off the other drugs.... *sigh....so frustrating...I am repeating myself aren't I???
Dunno anymore. I feel weight of the world on my shoulders this AM...maybe just because its been a trying couple of weeks...its just all catching up with me..Hubby was away on work this week and finally got home last night, madie has been up up up late every night this week once till 1030 (I know...boo hoo Regans mom is saying now..lol) and up at 630 I cannot complain about her mood...its AWESOME! when she is not having lots of seizures you can just tell..her mood and giggles tell all....Big seizures at times seem like a thing of the past..then ZAP. BOOM....back.
I had not seen a large seizure since...uh..over a week ago...and just this AM ...a real big one hit her. (hints my time to blog) The things I see are like well....Its like a seizure wants to start but it gets blocked. its real quick. NOt like spasms....where her body went forward...just that...like a seizure wants to start...but gets blocked. THOSE are persistent.
OH OH Finally obtained Madies Boost Kid Essentals 1.5 Shakes! NOT covered by stinkin insurance and 67 dollars for 27 at CVS.......I found a website that I can get them for 52.95...I dont know if I can "just buy them"
Still waiting on word about Madies Stroller...I am anxious to see this thing!
Welll anyhooo I will keep you all posted.
I wish everyone a good weekend...I look forward to some good family time..having dinner at Grandmas house this weekend welcoming Madisons Annt Brenda in town....and taking a breather. :) Hubby was invited to play some cards with the neighborhood guys in hopes of meeting some folks...should be a good weekend...:)!
GOOD LUCK AUSTIN!! I hope you get Answers you are seeking! I am so thinking about you!
HEY Karen! where are U?? Sleepyhead! Ohhh so a little pregnancy has slowed you down?? Nah, I was running marathons!! LOL