Boogie Boo Kid.

I succumb to my old habit of picking and pulling out my eyebrows...I was in the car running errands and I put my visor down and I notice one of my eyebrows getting thinner....ugh. I tell ya my mother did the same thing with her eyebrows..why? STRESS...when I am concentrating or I am nervous my hand goes to pickin...its so weird!! Just thought Id share that random thing...
Oh my little Madie..what a sparkle she had today..BAD tooth day...she actually bit her little thumb! she chomped away on her hands more than usual...tonight I gave her a little Tylenol and she felt muuuuch better...finally going to sleep...she was up most of the day! I had to put her in her crib so I could shower! there was no stopping her today...winey at times but otherwise happy...this pic from this morning..on her favorite IKEA blanket...lol.
I was unsuccessful in getting her in her stander for more than 10 minutes till the tears began to flow...but 10 min is 10 min...poor kid :( She did great with her food...I have these little bowls I got at Tj Maxx that you are supposed to use for measuring things to cook with but they had such cute colors I use them for baby food.....lol. She ate some Squash and some mixed grain cereal...mixed... I do not feed her rice due to her pooping pebbles every day....lol.. but she ate it! Never full jars but the cereal makes up for the rest of the jar I save for tomorrow... I have kept her on the Next Step formula..she likes it and seems fine on it... I really finally looked at the labels of both kinds...and well....aside from a few things I cant pronounce they are different in the calcium and something else....dunno... "I'm no doctor"...
We are not getting to the Feeding specialist till DEC 15th!! gee wiz! did I tell that already?? In the meantime I feel like I am on the right track with trying a little food 2 times a day...
*sigh*
Well I still worry every day when madie will get on her feet.....She was able to sit on her own only twice...and both times she was on different Roids...ACTH and Predisone...not at once of course but the times she was on each she could somehow sit....
OH gettin there....ONE day at a time....
I feel SOOOOooooo close....!! This battle...I am not certain that her current seizures are doing as much brain damage as the spasms did..but she had spasms for awhile and it takes time...I am giving her time...*whew* hardest thing ever......being patient with each day...weather its 1 seizure a day or 4..... ya never know... I fear the most that something that effects her physically is being damaged by her seizures...gosh I dunno....maybe a MRI would tell us.....
One step at a time.....
I have to cut short...hubby is yelling from downstairs that "shows" are on...a good laugh is necessary at the moment...
:) :) "keep on truckin"
Holi, Sometimes Zonegran curves the appetite....(10times better than Topamax)maybe hes not eating as much cus hes just not hungry.....what a chunky monkey! those cheeks!!WE WILL ALL GET THERE....
Ill be in touch :)
Cami you are still my hero..:)