And now in the News...

I feel like I have so much going on now..

First and formmost we have new diagnosis of Scoliosis for my sweet girl... Doctor said its mild but we still have to take her to a specialist to make sure and keep monitoring it for any progression...
When Madie was a baby and began  to have Infantile Spasms it was a devastating diagnosis that  took a toll on us all... I prayed that she would be able to walk someday and well.. 3rd wheelchair later.. But she is a good sitter and can move her limbs and is still so much more than I could ever ask for..
She could face wearing a brace or even surgery.. which I hope not..
We love her to bits and I was so scared to go the appointment so Dad took the reins and brought her to the grueling 2 hour plus appointment!.. even sending me a smiley picture so I knew she was ok..
She held on this little bar while the x ray circled and was a champ he tells me..
We will see the specialist in October for now..
My Anxiety has been shitty I wont sugar coat it.. Even trying some CBD oil for it but the stuff makes me GAG its so gross....comes in a little glass bottle with an eyedropper.. I kind do it and then crazy brush my teeth.

ANyhoo.. There are some really good things going on too! We got a bigger seat for madies chair to fit her much better with those long legs of hers! School will pay for a tray since that is considered an accessory.. lol lame! ALSO they will get her a new stander so she can stretch her legs and muscles out as well.. AND we are getting a new tablet since her old one is a few years old and I can sometimes borrow it for home :)  She has a really awesome case manager with her till the end of highschool now and she gets the ball rolling fast and furious! SO LUCKY

I cant believe this little booger bum will  be 13!!

 Well I guess there is alot to be thankful for but I still find myself getting really overwhelmed. I want to badly to wave a wand and take Madies scoliosis away but I cant and that makes me crazy.. My little nugget. But  the sun shines and she is the most gosh darn happiest kid that Mom and Dad love to the  moon and back. I miss her when she is at Dads and wish alot that I could be there with them just having a lazy day .. I love them both so much unconditionally despite the drama of years past I feel we are all in a good place with each other at LEAST in the good friend zone lol
Went to my nuttty friends house last night and played with her hilarous dog and bird.. lol she made some food and I am a sucker for free food! haha I have been also obsessed with making pickles OH MAN they are so good I perfected them finally! I promised her a jar for her meal. She can be a little nutso sometimes so I need breaks from her ocasionaly but it was good to see her lol
She also has a pool. holla
I feel good in my little town its a good fit for me. Good folks and fun places to hang and great farms for my cukes of course! And Madies school is the best! Looking forward to all the cool stuff we will get for Madie and MIDDLE SCHOOL in  the fall! GULP. She will have a lot of familiar faces working with her still I think the same para Miss Linda who I good with Madie :)

SO I guess that's my latest brain fart in a nutshell.
Hope everyone is good and enjoying the summer. OH summer program is going well only missed one day due to her tummy issue of well..lets say the damn broke finally. HA ohhh

Peace Out Homeslices xo

me