tag:blogger.com,1999:blog-1835269154343889387.post7421725074235279335..comments2023-09-27T07:27:44.173-04:00Comments on Madie's World: Insurance Whoahs...Unknownnoreply@blogger.comBlogger3125tag:blogger.com,1999:blog-1835269154343889387.post-80698676572232546112011-04-20T17:43:40.926-04:002011-04-20T17:43:40.926-04:00Thanks for all the support! I have faith that we ...Thanks for all the support! I have faith that we will somehow get this formula paid for, whether through insurance or some other means... It'll happen! I've actually thought about setting up some kind of donation fund or charity fund or something - not for Madie, but just for any of our kids that could use some assistance, whether for medicine or just basic needs like diapers or clothes. We're fortunate that Madie's school has a program that provides us with things like that from time to time. Makes us want to do the same for other families! I know how much it brightens our day to be set with stuff like wipes or pediasure (when she could eat it lol).Mileshttps://www.blogger.com/profile/12828467278715180467noreply@blogger.comtag:blogger.com,1999:blog-1835269154343889387.post-18539983284709547362011-04-17T23:33:24.631-04:002011-04-17T23:33:24.631-04:00I am a long time reader of your blog, delurking at...I am a long time reader of your blog, delurking at last :) I really like reading it - it feels like having an easy conversation with a good friend, even though when the topics themselves aren't always easy. I have a 3 year old daughter too, not with seizures (yet?!) but with an undiagnosed genetic syndrome of some kind. Global developmental delay is the main symptom. She looks a little bit like your Maddie - same pretty brown eyes! I wish you the best & would LOVE to donate a bit to your Ketocal fund for Maddie. If you are comfortable doing so, you could set up a way people could donate through PayPal?<br /><br />Sara, mommy to TateAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1835269154343889387.post-80861461910462647632011-04-14T13:27:36.562-04:002011-04-14T13:27:36.562-04:00I hope this gets sorted out. I hate that red tape...I hope this gets sorted out. I hate that red tape can threaten to take a miracle away from a little child. It sickens me that it is easier to get approval for $125,000 of ACTH than it is to get approval for a can of formula that is doing more than a ton of other treatments ever did.<br /><br />I hope you continue to see the good days. I have come not to expect the nirvana of seizure freedom but to cherish the 30 days we get between seizures. We have been so lucky since starting the diet. I accept seizures as part of my child's journey but am beyond grateful for every change that keto has afforded her.<br /><br />I think of Madie often and love that you are seeing some positive improvements.Anonymousnoreply@blogger.com