tag:blogger.com,1999:blog-1835269154343889387.post478623807897748060..comments2023-09-27T07:27:44.173-04:00Comments on Madie's World: Ketogentic Diet?? maybe??Unknownnoreply@blogger.comBlogger6125tag:blogger.com,1999:blog-1835269154343889387.post-63468010201729341742010-05-11T14:56:41.743-04:002010-05-11T14:56:41.743-04:00My daughter is starting the ketogenic diet on mond...My daughter is starting the ketogenic diet on monday. She no longer has infantile spasms. She has partial seizures and possibly myoclonic. Her EEG is showing multifocal abnormalities. So we are hoping this diet will do what eight medications and a brain surgery could not do. I have completely unrealistic expectations. I'll let you know how it goes.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1835269154343889387.post-55182827393287852852010-05-11T13:04:35.035-04:002010-05-11T13:04:35.035-04:00I have a question about vibrating toys/toothbrushe...I have a question about vibrating toys/toothbrushes...<br /><br />I was told by an OT that they can cause seizures. So I've avoided them forever. Have you heard this before? Is this total nonsense? Katie would love them and if my information is wrong I'd be very happy. :)Kristinehttps://www.blogger.com/profile/13994083459235522823noreply@blogger.comtag:blogger.com,1999:blog-1835269154343889387.post-82662353323225396552010-05-11T12:18:53.303-04:002010-05-11T12:18:53.303-04:00Saying many prayers for you and Madie! She's s...Saying many prayers for you and Madie! She's such a beautiful little girl and I know she is destined for great things in her life! She has great parents who are doing and sacrificing so much for her. That's a very awe inspiring love! I hope you find some relief from her seizures very soon!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1835269154343889387.post-1117779243649692192010-05-11T12:03:22.556-04:002010-05-11T12:03:22.556-04:00It's definitely worth a try! I just can't ...It's definitely worth a try! I just can't believe no one ever suggested trying it sooner. It's one of those things...changing your child's diet is certainly better than adding more meds! Although with Madie being such a picky eater it may be a slight challenge. Reagan loved the Ketocal formula. I tasted it and it's kind of like a vanilla milkshake! I don't think it matters where you start it...most places these days use the same protocol for the diet. I say just do it!! And I love these picks of Madie...she's such a big girl now!Reagan Leighhttps://www.blogger.com/profile/10276933188608521229noreply@blogger.comtag:blogger.com,1999:blog-1835269154343889387.post-65584964503269481842010-05-11T11:19:59.739-04:002010-05-11T11:19:59.739-04:00Kendall has been SEIZURE FREE on the Ketogenig die...Kendall has been SEIZURE FREE on the Ketogenig diet now for almost 4 months. We started it in July of 09, and it took 2 months to see relief. Then they slowly tapered off. It has been a lot of work, but after failing that many meds...you're probably willing to try anything!!<br /><br />I can't say enough good things about it. There are risks, sure, but not having any seizures and seeing my baby's personality shine through is worth it.<br /><br />We're down to one seizure med...Keppra...jocalynhttps://www.blogger.com/profile/07313874191250865765noreply@blogger.comtag:blogger.com,1999:blog-1835269154343889387.post-74872215199128422732010-05-11T10:57:12.873-04:002010-05-11T10:57:12.873-04:00I think you should try the Ketogenic Diet for Madi...I think you should try the Ketogenic Diet for Madie. There are many children who are seizure free or their seizures have been reduced. My daughter has been on the keto diet since Nov 09 and it took about three months for her to reduce her seizures. Now she has about two or three a week compared to the 50s or more depending on the day. If you haven't joined the ketogenic board from Yahoo Groups. I suggest you join and ask questions. There are many expertise families facing the same struggles.bluee19https://www.blogger.com/profile/17349715839168506098noreply@blogger.com