Miss Madie-san

LMAO well had no new pictures of Madison in awhile and figured id take some of her majesty eating tonight...
she puts her feet up like this lately so I cannot get the highchair tray on...sometimes when I force my way in with the tray she cries! Oh gee... I tell ya this kid is sure getting a sense of what she wishes for...
Like say for example...when I put her down on her blanket to sit..she puts both arms out to her side waiting for me to pick her up. When she puts her arms out to the sides and I walk past her without picking her up and she cries...
Something she never did.

we are going for madies FIRST dentist app as well! dirty teeth! time for her first cleaning..


In med news..where do I begin..its so hard for me to find the words...
I think that Madie is too tired.
Every morning weather she is crying or making happy noises...the moment that mama gets into the room and gets her out of her crib she is happy..hungry..but happy..
She kicks her little legs while I carry her downstairs and talk to her as I am getting her into her highchair...no matter what she is wide eyed and happy when you get her out of bed and she knows that the yum yums are coming..
A couple hours after her drugs are given she is so stinkin tired..hazy eyes, grumpy for sleep...fighting that sleep....winey...hazey eyes...just fighting that sleep...I mean she gets good sleep each night and there is no reason for her to be so sleepy only 2 hours after waking......After her nap she is usually ready to go..and better but I really would like more alertness in the AM...last night she was out by 7! right after her bath.But in defense to that her naps were short..
I am so uncertain if its the meds or if MAYBE she is awake earlier than we think she is sitting in her cric entertaining herself..lol yesterday she was up at 545 making noise...then I got her up and changed her and she fell back asleep with us in bed..... till 830!just wanted to get changed huh?
I refuse to feed her till I AM READY to get up...Im talking like 7am is kinda the general rule here..forget that 330 am waking or 530 am waking....no sir..she waits...We were past that late night feeding crap at 3 months! Eat some more foods than madie! "just sayin"
Usually she is making happy noises anyhoo...but not so often she is up like that...

Shes 3 and a small part of her is like a regular 3 year old...
She is seeing the world and wants to be entertained alot more than she used to be...and letting us know that...winey and crying and when I pick her up or hold her and make faces at her she is happy as a clam....she reaches out for my head with those wet fingers and grabs noses, hair, ears, and claws! LOL pinchy!and very sticky!
Not so used to that! She even holds onto my shirt when I carry her and gets like a death grip! LOL
Well I guess that is all I will be rambling about this morning..Madie is back to sleep and I need breakfast.
I will let you all know how the Dentist goes in a small PS...weathor good or bad..
:)
PS well needless to say she was not back to sleep...it was time to get to Dentist so I got her up and we were off.
The waiting room at this place was SO NICE! dim lighs and a cool fish tank and tons of magazines..
Madie was not in a great mood when we got there..she was crying in the waiting room for a bit and then I put her back in her stroller where her eyes got super heavy..Uh oh...sleeping...
I held her to the side while the doctor looked inside her mouth and she let us ALL know that she was not havin it! But there was no cavitys and no harm was done..just a quick polish and some gunk picking...yuck. She has an overbite and some spaces..which is due to her sucking her thumb so much but there is not much we can do about that..
He also tells me that our water in my town does not have floride in it...so he gave me a script for some floride drops that we have to give her till her big teeth come in...it will I guess get to her bigger teeth to make them strong for life. Whats another Oral Syringe eh??
Well we left and all was good. she goes back in 6 mo.
And that is that.
:)

gobble gobble

If you know me well enough you know I literally count down to Turkey Day! I love it! No Obligation to buy gifts....just fun food and family. we all sit around my mother in laws big table and we feast and laugh and feast and laugh some more!

What are we all thankfull for this holiday?
Think long and hard and tell your loved ones :)
I am super going nuts tomorrow trying for the first time to make an appple crumb pie! I am a better cook than baker so we shall see! LOL
One day of preschool for madie this week and then its break for her! Lucky Girl! better work hard on your PT tomorrow kiddo!
Happy Turkey Everyone

Lysol Wipes and the latest. :D

The weekend at LAST!
Sicky Mc Sickerson has been getting better...well OK, she is coughing at night but generally in a good mood during the day. But what a nasty cold!
Me? I am trying not to get sick...constantly washing my hands and wiping things with bacterial wipes and lysol...SUCKS.
Miles was complaining of flu like symptoms as well. NOW Ok....I should be nursing my husband back to health right? OH GAWD...he is the biggest baby when he is sick. lays around and watches TV moaning that his throat hurt...Oh man. I tell ya. The men in our lives would be helpless creatures. SO in the meantime I am trying to clean everything and take care of madie and do laundry and ugh....where is my supermom cape????
BUT ITS OVER! We have all made it thru! Hubby is back at work and madie has been going to preschool.

I wait anxiously to see if I too will become sick..but so far....well I don't want to jinks things... wash wash wash...my hands are so dry! Doesn't help that I have this nagging drippy nose..HELLO GERMS! come thru my nose will ya!? Like a big sign for germs that says "enter here"

Well in news...Madie is so far enjoying Preschool and they absolutely love her there! The other children are such good helpers with her and love to push her stroller and help her with projects and play. The other moms say that their kids come home and talk about helping madison...just touches my heart :)!
We have had a few scribbles come home that I am hanging on my pantry door for all to see as well..LOL well Alot of "hand over hand" scribbles... but SHOWING her none the less...
The other moms and I went to have breakfast the other day as well..it was nice. Tryiing my darnedest to bond with these women but its competitive this whole "Mommy Society" everyone is always comparing how well their kids do in this an that..I dont really have stories like that...
Madie continues to Drop Seize..SO ANNOYING!!!
Neurology called me back about a week after I called them...and Dr wants to increase the Banzel.....by 100mg in the AM and PM...so this wil be the grand total of 500mg per day total! we have been at 200 and 200 and now we add 1/2 tab each time....
Have yet to do that.
Well as far as her other meds she is still staying the same..no talks of lowering her Depakine...which was kinda what I was hoping for...UGH.
I have a huge hunch that these "drops" are currently leaving madie at a plateau. These ugly seizures dont want our kids to move forward! I hate hate them.
Nothing I can do. and I hate to see madie trying sooo hard to get there...she gets herself into a frog position...pushing with those arms and knees...OMG its so funny! I think if we just keep workin her...keep on keep on...SHE WILL get there..but slowly.
She has become so much more interactive...like I get close to her and she reaches out for me..or she puts both arms out when she wants to be picked up..when you walk past her without picking her up she crys..LOL she KNOWS!
She has been eating OK lately..doesnt help that her lil nose is clogged but I suspect that will improve when she is feeling better..
She is 27 Pounds now! getting there! (did i tell you that already?)
Feeling heavy on mamas back...! Certainly getting that "I want and dont want" thing down! crazy!

*sigh*
I have to admit that I enjoy dressing her up for school...a far cry from her over washed leggins and T's :)
mama spent like 50 bucks at Gymboree....BUT BUT got a 25 coupon back! SO THERE! LOL
Hope everyone has a great weekend and OH man TURKEY is coming soon! but Ill blog before then.
Please Please Keep Lil Reagan in your prayers...that her tum tum feels better and she can eat ok again. :(
((((HUGS))))
Me.

sicky mc sickerson

Oh Madison. What a cold you have. congestion central over here. she woke with a horrific sounding cough! Had a fever of almost 102 yesterday but so far today she is in a good mood but those boogies....yuck. Each time she sneezes...well you know the rest..lol
I am thank full that she slept well last night with her vaporizer on and her baby chest rub on her chest..mmm that stuff smell so good..
Its the baby stuff so they have some added lavender etc..
I am only worried that all this mucus will lead its way to her ears..BUT she has never really been prone to ear issues...so eh...dunno.Debate on calling the pedi..I mean she will probably tell me to do what I am already doing eh? Colds are Colds..

I can still get her lil stuffy head to laugh this morning and poor thing..it sounds so funny! Just STAY a cold and no more fevers and we'll be OK.

This mama spend the weekend in Niantic as well. ditching hubby and madie for a couple nights...My mother in law was having her friends there and it was kinda a ladies weekend. fun stuff. Great to get away and chat with adults and eat yummy food and chat away. good laughs as well. Oh how I need those! From her girlfriend who always has to wear two pairs of socks to the one who threatened to go run the beach nude...It was great. (and no she did not do that)
Well...Its a mild day in CT getting into the 60's...quite odd for Nov....but hey, its great!
I am off to store today to get Madie her scripts and some chicken soup stuff...homemade baby! No exceptions! Gotta get my sick kids better!(yes, hubby is one of them..lol) he is at work now after getting up at oh...5 some-thing after staying up to watch the Pats LOOSE....now he is suffering. Dayquil and all...so I told him that some soup is on menu tonight. Its healing I tell ya.
ME? well supermom is trying all she can not to get sick. Ohhh please....
Keep my hands clean and my vitamins going...and well...one can only hope illness does not strike.
Hoping that Madie takes some good naps and eats her fruits and veggies today so she can get strong.Is that saying "feed a cold starve a fever"?
An easy week for school with two early release days....I will play it by ear. But I imagine she will be OK by Wed...yah?
Hope everyone is well...check out the handsome Bennett..never mind that surgery! he looks so grown up in his pic his dad posted!
Im still workin on catching up on some other blogs but ALSO keep Reagan in your happy thoughts...ohhh this sweet girl...hangin tight. Lets get better! Hope she can get off of that Topamax! I hated that drug! No good! Happy late B-day to her warrior mommy as well.
(((hugs)))
Stay Healthy everyone!
PS great chatting with Cami's mom as we watched Taylor Swift sweep the CMAs as well. hee hee.

Just a Moment. (of sorts)

Had one of those "Its effin not fair" moments the other night that brought me to tears.
I LOVE LOVE my cousin-in-law she is the bestest! She has a daughter who is the same age as Madison and just welcomed a wonderful little baby boy into the family! Now it was not the pictures of her trip to Disney that made me sad..they were cute as can be with her daughter posing next to Mickey Mouse and riding the teacups...
It was MY DREAM. I wanted to take MY KID there...I wanted to take pictures with Mickey and see Madie run thru the park happily taking in the magic...
AT that moment she had everything I wanted..
I was just beyond sad for my baby girl and looking at her how beautiful she is and feeling such an overwhelming sense of unfairness.... I wanted Madie to go with her daughter and cause so much trouble thru the park that we would not be able to keep up with their wizzing little selves...
I am by no means being bitter against her..I hope I don't sound it..heck yeah, Im jealous. And wishing that was Madie standing by Mickey Mouse..

Well Preschool has been a tough pill to swallow some days..
OH not for me of course..I just LOVE dropping Madison off to be cared for even if its only 2.5 hours..
Madie does it to herself waking at what she thinks is 645...being now 545 and school begins at 9...so by the time the day begins she has already been awake for nearly 3 hours er so.. SO bout 10ish she falls asleep in the class..
She gets home and she is hungry- usually refuses her all forms of food while she is there. killin me that they waste a Boost Shake...but aside from that...
Now maybe an "evening class" LOL like 3-630 or even a 2-430...after naps and fed and ready to go!
Can we come to a deal?
Yesterday I was standing outside with the other moms..still have yet to really converse and never make the first move in conversation..standing there with my child in her wheelchair/stroller...as the other kids run all over the front entrance wat greeting their little friends...as Madie is sleepy and could care less. Dropped her off and wanted to grab her back and just coddle her to death....
Other moms are nice but ya wonder what they think.."oh, that poor child" "what could be wrong?"...
OK coddle is not an option..but a very over protective impulse comes over me. Does that make sense?

Im Med news we have doubled her Banzel in the AM now at 400mg per day total. 200 in AM and 200 in PM...I worry with any increase..we give it another week and then MAYBE we can go down a little on the Depakine...we had initally increased back in May when Madie had a breakthru tonic clonic...but honestly..she has been pretty free of those going on a year!! Its these damn "drops" that are pestering her now..so by no means is Madison seizure free...but she is BETTER...We move forward.

I have been having hunches that Madies seizures are in the left side of her brain...she tends to fall to the left side..hints the lovely black and blue marks she gets on the side of her head..:(
OOOO Completely off subject!
DETROIT!
Oh we are goin baby! We just had Madies records from Hartford sent out to Dr Seizure himself... really hoping to get BACK in maybe the beginning of the new year. Ill keep ya posted on that! Dont know an exact date but we will work on that.
All in all things are going.... Hubby and I are off tomorrow night see an old friend play...well we have seen him play in all the different bands he ever played in and he is SO awesome! Its going to be him and another guy guitar jammin. should be a fun time. Thank you Grandma for babysitting!!
Keep all the little ones in your prayers and thoughts.
((hugs))

lifes little updates :)

OMG if I eat more candy I wll explode!
Its all going to Miles' Office GOING! ALL OF IT! LOL
I feel so fat. SO FAT. I hate where my body is now...I KNOW how I got there...my love for cooking and wine. Yup. that has to be it. The idea of the work it will take to actually loose the weight...the healthy food...the rabbit food....I want to take a nap thinking about it!
IM HUNGRY!!
When Madie was born I quit allot for her..I mean she is my child and I love her and she is worth any sacrifice I make!! I was working full time and go go go..it was an easy decision to quit my job...I mean madie needed me! she just did. and I was not to argue. SO much has changed since I quit my job...for one money is super tight and I hate that. I am a shop-a-holic....Are there meetings for that? LOL
We did not dress Madie up for Halloween...ehh just seemed silly I guess if she cant go trick or treats...
NEXT year..no matter what this kid is going out!
She always laughs when you make a buzzzz noise so I think a bumble bee may be suitable for her.
Well anyhoo...Friday at school was a rough one..all she did was cry...I guess that is what will happen when she gets no sleep!
Madie has been a tricky sleeper lately...getting up at 330....415....6...you just never know...and this my friends leaves her GRUMPY! and when she gets up at 630-7 and school is at 9...oh you betcha by 10 she is tired!
Well we are firm believers that she must learn..ITS time for school suck it up. Like when I was 18 working at Tj Maxx and I was scheduled for 830 in the cash room and was so hungover I couldn't see strait...learn learn....LOL
Today she was just off...a temp of 99.2...and a GRUMP...teething? dunno...gas? dunno. Ear infectinon? duuno...she has been rubbing head and putting her hand over her eye...sleepy??? I hope her eye is not bugging her...
She comes home from school smelling of teacher perfume BIG TIME...I wonder if she has an allergy to this fragrance?? gets in her eye and bugs her??? Seriously folks, takes 2 baths to not smell it in her hair!
I was thinking maybe her head itched so I got her some different shampoo for her hair..some Aveeno..I loooove the lavender lotion so I got some shampoo...nice and hypo-allergenic...
Madison LOVES tub time...I got her this toy from target shaped like a starfish that lights up and spits water out the top....she loves to watch it and stick her tongue out to get the water...I recommend it! :) I am nervous to free sit her in the tub cause her damn jerks keep on coming
In med news....
Banzel...*sigh...dunno...I think it really takes the edge off...like I see LESS jerks...Minus today which was just insane...
I have been trying to give her the med with food instead of mixing it in a syringe with shake.....hopefully that will help her get more of the drug.
She is still generally sleepy in the AM but wont go for a nap till bout 1230...

Am I rambling too much??

Pediatrician suggested that we get madies eyes and ears checked out as well...We wont get into the ear doc till Dec...and I have to make an Eye apt this week. Only cause whe she grabs her toys she kinda reaches and reaches almost like she is feeling for the objects...and when she gets the toy or link or whatever its right in her mouth..but its weird how she does it...
In eating news...AWESOME! My big girl has been eating any baby food flavor presented to her...minus squash and green stuff...LOL even today we tried the Yobaby banana yogurt and she gobbled it down!! WOO HOO!
She still cannot eat without her thumb and pointer in her mouth...she kinda sucks the food down...BUT SHE EATS!
her speech therapist at school is going to work on that..I think I will send in the NUK brush and let her use that...
WEll folks...Im out of thoughts..gotta feed Madie now..get the meds down and get her to bed....damn time change! WHO came up with this!!??
Where does that extra hour go? Are their people living in that lost hour? next on syfy.....
((hugs))