Giggle Bugs and Feeding Teams

I bought this shirt on the employee website...bullseye shop...hahahahah "sorry foks" it was like 5 bucks!! I am a sucker for vintage T's...and probably have theee biggest collection...haha She is quite he giggle bug lately farting noises on any part of her feet and tummy will send her head back in full giggles...hahah
WELLLLLL Feeding team..are ya wonderin?? Well it went alot better than last time..we had a 3pm appointment which was better for madie than the morning appointment...she had still fought off a nap all day and I was super worried that we would once again get a screamer..
Well Hubby went with me this time to meet them all which was great so he can get a feel for what is going on as well.
We talked about doing a barium swallow study...which I am hoping will come out fine..I mean she eats her bottle just fine and when she does take her food she swishes it in her mouth for a bit but unless you put heaping spoonfuls she wont gag "every time" she has never has any issues with breathing or the dreaded Pneumonia....BUT they want to do one anyhoo...AND if that goes well we can go to this other team of feeding folks closer to our town...not having to drive to the Hospital once a week. (they want once a week)
They gave us recommendations for as follows...
Boost Essentials 5.1....LOADED with calories but not sold in stores...have to get cases delivered to house! bout 50 bucks for a case...which as like I dunno...24-27...dont have the paper nearby to check....
AND they gave us this sample of this stuff called DUOCAL....myduocal.com Its a powder stuff that we add like a teaspoon to bottles and food and it adds calories...the paper she gave me on it looked like all outdated...but its a Canadian thing too...lol.. A 4 pack of that stuff is like almost a 100 bucks!! you get large cans similar to formula cans...also dont have the sheet nearby to tell exact amounts... THEN they say that we can add Oil to her food...like veggie oil to add calories as well...and they want like 3 shakes and 2 jars of food a day!! Geeeze!!
Well I will be excited just to get more calories and nutrients in her weather its a gazillion bottles or not...she will be getting more calories than what she gets now!
Madison even took a few bites of her pears for the lady...(she was speech therapist...sorry) watched as madie ate and even put her stethoscope to her neck...which was not successful cause madie was like "what the heck is that cold thing on my neck?" hahaha it was funny...
BUT they say she was swallowing well....but still hard to tell...
Gah!
It was Ok...I cannot say that I felt the interrogation that I felt last time...It was good to have hubb with me too :) OHHhhhh we will get thru this lil one...bump in the road..:) :)
Seizures????
Well....they were very unpredictable...and I know that each time we tinker with Depakote we have to be patient that it never worked overnight.,...I mean it was like a month after we even started till she was seizure free that month of Dec! Sooooo also I take into consideration the decrease of her Zonegran....WHAT A HAPPIER KID!!! I hate hate hate that med!! Absolutely no eating! she would maybe take 2 bottles a day! and now....
I had her eating "Spring vegetable mix" The Earths Best Organic..."fancy shmacy stuff" (on sale at the store!!) last night...I like to call it "green slime" and of all things...she gobbled it up!! here I was, buying all these delightful flavors....and well....maybe I should buy some yucky ones...hahaha
Ya never know..the second time I feed it to her she could compleatly reject it!!
It was good day yesterday...she was happy and she ate and she had no seizures!! lets keep it up madie!!! We can only hope and seee....yah never know.


THIS Little Booger was in our recycle bin a couple days ago!! hahahaha!!! My husband is addicted to those Arizona Iced tea things....THOSE ARE NOT Seagrams bottles...hahaha( hey we had some people ask...)
PS great talking to you Karen!! I laughed at your "southern drawl"I just looved it! Do I have an accent as well??? Do I sound funny??
Huggs mamas...
You are in my thoughts Lil Regan....keep smilin...and be patient with your Depakote Austin...:)

PS also going to see if Insurance will cover the Boost and Duocal....as we can claim the "failure to thrive" but I dunno...wish us luck.....

A good Cry

NOt a day goes by when I dont need my father....I lost him in Highschool I was 16...how proud he would be of his granddaughter.... I did not see my father the day he passed...I was at school and when I came home from school he was aparently in the bedroom sleeping...the door was closed I had not clue anyone was home..when my mom and sister got h0me and found him in bed...abulances were called and he was already gone...Heart Attack.

*************

I guess I bragged to much...maybe I got too hopefull...maybe I just got my hopes to high....maybe I should just realize that seizures are going to be part of Madie's world weather we want them or not... they just DONT GO AWAY!!

Seizures are few...they are so strong when they do come...she is out of it for a good minute or 2...its pretty scary when she stares off into space after the initital physical part....and I say her name over and over and squeze her little hands and hold her tight.... She is so happy seizure free!! and sadly I have had tastes of this great mood and when it goes and you just wait for madie to come back to herself again it kills me....

WHEN is she going to have a chance without seizures?? Do I loose faith in Depakote????? Did I make the wrong call going down on her Zonegran?? I am so tired of this.... I feel so helpless..I feel like the seizures wont stop till they have robbed her of every sparkle she has!!! Sometimes I look at everyone else and feel that they always have something better than madie....like "oh..he can walk..or at least they can play with toys....OH and they are not looking at Adaptive strollers!

I dunno...I guess today I just needed a good cry Today....

Her PT and I talked about Preschool...a far fetched idea to me now but when madie goes there it will only be 3 days a week for 3 hours...and they will do sooo many things to help her learn...things I just cant do at home! I am scared to death of it but also excited to see what programs there are for her...

We had this whole talk about it and the stupid Adaptive stroller for her transportation needs...and when she talks about it she in "not so many words" acts like she doesnt think madie will walk some day.....and I want to scream at her and tell her where to put her WHEELCHAIR*@*!!.....

She means well and we like her alot..she just loves madie to pices...Its just makes me crazy!!.

Thinking about u all....next time a bit more uplifting huh??? I promise :)

Me

Noisy Box!!

THIS THING!! LOL!! The Noisy Box!! Lil Madie just adores it! Never fusses inside...crunches that crinkle paper and puts her feet over the bars! hahaha I try to keep her legs free cause they are always in the air!

Just a smiley girl..:)

A overhead veiw....(could have moved my remote....hahaha)

Madison has had a huge breakthru in her eating!! A WHOLE JAR of Pears she did yesterday and today!! along with half jar of Bananas! What happened??? SO now after year of fussing and gagging and throwing away tons of food she decided she likes it?? Dunno folks....keep your fingers crossed.. I I still feed her shakes as well...but like today when I gave her the jar she only ate about half a bottle after which to me is a great meal!! Still the pressure to get the calories up up is pressing on me!! I am not going to stuff her! I will try to feed her every 3 hours er so....and squeeze in maybe a couple jars of food in there with half bottles...we shall see. I tell ya ..she is happy...even opened her mouth for the food!! NEEEVER did that! I wanted to call everyone I know and tell them that she is aware of the spoon!! no crying! then when she was done she clamped her mouth shut and was grateful for the warm facecloth to wipe up.

She still does not hold the spoon to let you know too...no self feeding yet...

Madison made it just shy of a weeek with her Zonegran decrease....and her Depakote Increase...she has seen no ill effects so far...as far as seizures...well I am hoping that today will be a seizure free day....as we have seen seizures since chritsmas.!! She had a great day today...although I have not gotten that 15 minutes strait in the stander again she is in that thing for maybe 5 minutes...intervalls.....hope and more hope for those muscles!!

We ALSO made an appointment with the GI folks..they called me up to make the apointment and the lady said that she is calling to schedule madie's "feeding tube assesment"

Eh??? UN-known to me! I was like "oh hold on a sec....no no no Madie is not getting a feeing tube... I was under the impression that we were going for a Barium Swallow study and hoping that she does not have GI issues...." The lady was confused and then said the doctor will rule it out....OIY people!! gah!

I feel like this feeding team just doesnt know enough yet...taking the frustrated way out "ohh just tube her"

No no non no no nonononononono no no

I am working so hard with her food....she was on bad seizure meds that caused weight loss and loss of appetite!! Lets give her some time off that crap first!! Can I stand correct?? (see whole jar of food above!!) *sigh* Ok Ok I am surly not happy so far with this feeding team and i will probably go in next week with my guard up....

BUT so far....we pray for the seizures to go and that Depakote will remain her miracle drug.....
Pleeeeeease!!

Lil one is just plain happy these days and I guess for now we will enjoy that. :)

Ill be posted!!

(Hugs))

Angel Angel..

Awe my Madison Greer...I just love taking her picture..

We have increased her Depakote to 3ml twice a day and she is slooowly feeling better..I am happy to report the slow tapering of her seizures..the last biggie I saw was Sunday...she continues to twitch sometimes and I have seen seizure while she sleeps..I feel we are at the same point again..waiting..waiting... Her mood has been OK has her moments..and those little fingers have marks from her thumb sucking...her cheeks are looking better some days but some days I just cant get enough Vaseline or A&D cream on them! Raw Red!
I am nervous beyond belief to see Genetics again...what if my madie HAS this Retts Syndrome or some other disorder that will stricken her to a wheel chair?? I just really hope the stander is helping somewhat for her strength...I will keep u all updated on that one...the apt is not till March!! I just wish some doctor had any HUNCH to what is madie's deal??? Gah! lets make me wait loooonger!! !
This picture below I had just cutt her bangs....ohhhh how I should stop snipping! LOL

She did suuuper with her OT today...Miss Tara brought Madie her Noisy Box...a plexy glass top with small holes and hard plastic sides you are supposed to string beads or toys thru the holes so she can lay inside and make amplified noises and reach for crinkle paper and beads etc etc...SHE LOVED IT!! making noise and laughing and holding the crinkle paper! I was awed! She also ate some sweet corn and nanas for her therapist....we were instructed by the mighty feeding team to freeze food in cubes...well she hated those and they were too cold for her...lol the corn had some texture to it and I was nervous but she enjoyed her Beechnut Sweetcorn....YUM! SO BIG !! We are also keeping a diary of how many ounces she eats each day...some days are bad...I can only get 17 oz down!! I am giving it time...with her Decreased Zonegran I am hoping that will improve...crossing fingers.....
I have pics of the Noisy Box I will post next blog :)

I guess not much else to report....SO FAR SO GOOD WITH HER MEDS!!! Now when she walks i cant say! Her P.T was talking already about "adaptive strollers" for school.....

School?? Oh gosh...and you mean "wheel chair??" More prayers for madie please! gah! and school? cant fathom!!

How she grabs those feet and squeals!

Not Much to report...:)

January 2007...Mamas little Chubbers!! we calleed her frogger! LOL

Madie and her seizures are just not getting along these days....gah. We juuuust increased her Depakote on Thurs night.....*sigh* dont know what to expect.

Thank you all for such great advice on feeding!! I know allll our kids have certain feeding issues and all the advice and things to try! great! I am going to make food ice cubes...lol so we can play around with some flavors and planning on just drenching her hands in food and see what happens...lol...Illll have some pics..

Today however she is sleepy....we are cold! the house will not heat over 61...We placed a small space heater in Madie's room last night and gave her her warmest blankee...oh poor baby...kid was waking with freeeezing little feet! even in socks!! eeek!

SOOOooo aside from these temps reaching 6 below in some towns....we are all hangin in there...Hubby is at Home Depot buying "man toys" and madie making noises on her blanket...the cat stalks me for my warm chair....hahaha

Dont really have any news....See the feeding folks in 2 weeks and that is really it...have to give med increase a few more days...maybe a week or two.....

Ill be in touch

Hugs and Hugs

Me.

The Team of Feeders!! eek!!

To say that the Feeding team was not intimidating is an understatement! MAN I was grilled!

From why I do not try foods to how much of her bottle does she normally take and when do I usually feed her and what is my schedule.....

Schedule?? With a child who has had unpredictable seizures for one year do you think I have a schedule?? Seriously folks...I fed her when she was hungry...let her sleep when she would fall asleep...and if she was not fussing for food Id watch the clock and just go every 3-4 hours er so...(IF she was awake and not zonked out from a seizure....) AND if I did try the every 4 hours do you thibk she would even take her food each time??? uh....no. when she would wake Id get a bottle ready....pretty easy huh?? Well I guess I was supposed to have a precise amount in ounces that I feel she normally takes in a day...and how long it takes her to finish a bottle...Has anyone ever timed a feeding?? When I was trying to tell one woman something another would interrupt and say something like "sorry to interrupt but...." and there goes that train of thought...poof.

They had this huge cabinet of different bottle nipples in packaging and sippy cups and bibs and different contraptions that kids can sit in to eat..from boosters to this thing with tons of straps on it...cant even explain it!! We chose the traditional high chair...lol

Well I cannot say that my Madie was agreeable AT ALL!! ohhhhh the tears....oh the red cheeks.I wanted Madie to understand So badly that I needed her to just sit in the highchair and take ONE measly bite of food for us...as I was getting her in the chair....all eyes were on me....."hows my tecnique?" I wanted to ask sarcastically......

Well Madie began to cry and cry..I knew she was tired and I knew that maybe her meds were kicking in and she was ready to to to sleep...poor baby....

I showed them all the foods I had brought with me....Squash, Bananas, Chicken Noodle Dinner,Pear Pineapple..... Well as I showed them they all conversed with each other about how "oh..that's a little strong flavor" "no, not that one" "oh, I wouldn't try that one" then one looked up and asked if I had anything blander....

WELL if anyone called me and gave me some kind of instructions....of what I am SUPPOSED to bring.....I was getting huffy..but remaining composed as I asked: "Well, do you have cereal?"

We tried Squash..cause that seemed like the easiest flavor......gah.

ONE small spoonful set my tired little one into her hysterics....they all just watched me....then one said "Do you think maybe she wants her bottle?" I said as I wiped her face and took her out of the highchair I simply said she was tired that was all...I poured a shake into a bottle as they continued to observe me..madie refusing I just wrapped her blanket around her and snuggled with her..she was asleep in seconds...

We just sat around this table and they began to critique madie's bottle..."oh this nipple looks old" maybe its time to get new nipples....

GAH!! We are here not to critique my lack of shopping for nipples......

They suggested we change the type of nipple to a different flow instead of the cris cros hole get the ones that are just a little hole...to make her suck harder to build some muscles in her face that looks "low tone" HOW can a face look low tone?? Okay so maybe her muscles are weak that help her chew and suck and awallow..etc..dunno, ya think all that thunb sucking..lol I had a few of these one hole nipples and she is just fine on them..eh..dunno
We are also slowly getting there with GI appointments and Barium swallow study etc...Ill keep ya posted when we are going to do those,,
We head back in 2 weeks...(think i already said that) :P
Soooooo any feedback?
I just wish a doctor would give me some kind of hunch to what is Madie's prognosis...the fear of the unknown scares me daily...We are going back to Genetics in March for hopefully a less frustrating apointment...maybe the guy can tell us something instead of talking about how I carry Fragile X Syndrome and Madie doesnt....."next test please"
ON THAT NOTE...Im thru typing today and Madie is having seizures as I type in her sleep...juuust increased her Depakote yesterday to 3ml 2x daily... ALSO got the OK to lower her Zonegran...am i CRAZY FOR WANTING THAT?

HUGGGGGS MAMAS :)

Less Zonegran Good???

OK OK ..I know...excessive blogger here...
I juuust need that reasureance that I am making the right choice here.
called Neuro and pushed for decrease in her Zonegran....We are increasing both her AM and PM dose of Depakote to 3ml tomorrow...we were going to wait till friday but her seizures today have been miserable...gah!! I await the call to give me an OK....she is on 200mg of Zonegran and .25mg of Clonopin....AND now 3ml of Depakote 2 times daily...
Her appetite stinks...she is skinny and grumpy...and sleepy...no energy!! I feel so strongly about getting her off meds!! In the past Zonegran DID cut her seizures in half...but not away..(Ive already posted all that info...) I need her to be hungry! I just KNOW that when she can get food in her tum she will feel better as well!!
Feeding Team Apointment tomorrow!!! Eeeek!! Ill keep you posted!!
Me.

mommys big girl!

A WHOLE 10 minutes in her stander!! AND SMILES!! verrrrry rare!!
I am so proud of my big girl tonight!! Ohhh she is teething up a storm and I have been trying to feed her small bottles alll day...but she is in good spirits so far today...few naps! Maybe it will be like last night when she went to bed at the perrrfect 8pm...and slept all night!! whew! After her 10 minutes she had had enough for sure...its alot of work!!

"Mama, get me out, I dont wish for this anymore"....lol

I am still really nervous about the feeding team apt ON THURSDAY!! ahhh!! Ill let you all know how that went....

Hmmmmm OH OH alllllso made an apointment with Genetics again...that is not till March but I will certainly let all know how that went when it comes....."just give me answers!" get my baby girl on her feet!!

Increased Depakote seems to be working...she is sleepy from her other meds...but I can tell she is feeling better...it was rough 2 weeks of her seizures....she is beginning to try to roll agian....so I am optimistic...cant really think about genetic apointment NOW...so I will just enjoy her being happy for now...:)

Just wanted to post these pics...

:) ME

A small sigh of releif...

Madie's blood came back just fine...she is tolerating the meds just fine....I expressed my concern for her lack 0f appetite.....its like they say in not so many words "whould you rather her have seizures or eat well?" UGH.....Of course I dont want her to have seizures..! She also needs to grow! her weight gain has been slooooooooow..she is just not hungry and gaining longness! she is so tall!! Tall and skinny like her dad I always say! Her Depakote Level was 52....which is low...and with no help from the doctors I was able to understand the numbers...(thank you cami's mom :) :)....I guess they look for numbers between 50 and 100...over 100 they are getting too much med...its a gradual increase as they have told me...We have not seen the horribe strong seizure since Wed night...errr...when I posted last.....dunno...I would not doubt for a minute that was why her seizures were getting bad....
There is no OK to lower meds yet....I think and kinda agree that we need to have a long time without seizures....It will maybe take months!!
I still worry about madie and her physical development....dunno what to expect from her...she has finally trying to roll agian...flipping herself over pretty well....does great on the yoga ball as welll that I got from Marshalls....lol (10 bucks!)
Well I cant say there is much else to report...Hubby and I are taking madie out to Home Depot today to spend a 125 gift card we got for christmas hoping to find something cool for house...and you know I LOOOOooooove shopping :))))
Also a couple pics of the ice storm we got Wed night....top is right outside the door on our walway after I hacked it with the shovel for 3.5 seconds and gave up...second is the driveway....with hubbys car spot spared...hahaha



SOLID ICE!!

Keep Lil Austin in your thoughts as well...he will be joining the Depakote Club!! Welcome Kiddo!

Keep us posted mama....I looooooove the latest pic....enlarge and frame!!!

Hugs mamas

Lil Regan as well....you are quite the sweetpea! keep those smiley pics....you have a strong mama :)

Ok Im outta here :) lol

Are you there God? Its me Madison..

WEll after dealing with a bad cold and breakthru seizures..and tears and not sleeping well...I think Madie is feeling a little better... I called the Neuro yesterday and got some nurse that I normally dont talk to...and I was frustraited..I know that when I talk to the other nurses they know who I am and know Madie's meds etc etc...this one I had to go over what she was on etc etc feeling I am repeating myself...I am hoping that one of the other nurses I know calls me today...

She did give me the advice to go get her bllod work dont ASAP...and that they need to know how her levels are before we can do anything else...well I was headed out weathor madie was sleepin or not....that was a scream fest but Madison was brave they even gave her sticker that she cares less about....LOL I really feel very stumped here...I mean if there are seizures here and there...like one small one this AM as well...but none yesterday....eh?? dunno.. I am reeeeallly wanting to wein off some meds here! ya not helping that kiddo!! I want up up on Depakote as well of course...I feel as if it was working !! Im not going to loose faith in the Depakote YET....

I am SO SCARED that her seizures will sloooowly get worse if something is not done! BUT what?? I dont know what I am going to do if madie is 3 and still not trying to stand and crawl and walk.....We have to wait for the blood work as well

OH and the eating...ugh.....you know that story...no news on that...going to see GI folks NEXT FRI!! eeeek!! As they force the kid who is never hungry to eat....

ONE day at a time.....one hopefull moment at once...

***********************************************************

PS- Its 715 now in my neck of the woods and Madison just had a huge seizure..at least out of it for a good minute along with jerks and the horrible eyes rolling in her head...I held her limp in my arms as she gazed into nowhere and talked to her and cradled her...she was so soft and floppy...We can only be patient and see how the blood work comes back...

I feel so helpless against this battle..

I want to curse the world! What is wrong with our kids???
I hate this ache in my heart...I want to curse it!! I want to be strong and be optomisic and KNOW that Madison along with allll our kids will overcome this!! How many years do we have to give thanks for no seizures...I got a 2 count on that one....

I will keep u all posted....

Thank you for your prayers and words of encouragement..what the heck would I do without it??

*Tears***Dear God are you there? Its me, Madison.

Me.

Ill keep ya posted.

there baaaack. what now?

The smell of sausage and peppers fills my home as I type and simmer...I sit with madie by the computer..she just had a pretty big seizure..I am just at my end...I want to cry for the first time in weeks...
I sadly almost expected it.."I mean anything that ever did work..meaning Acth...worked for a month and a half...Madie is just days off....
I still find it very hard to accept that Madie will not be like other kids..In my heart I know the reality of it all...I greive..I never knew what unconditional love felt like till madie came into our hearts...
So what does this mean now? Increase Depakote when she has barely gained any weight and still half the time refuses food..getting at times half the amount of shakes they want her to eat...sleeping most of the day cause she is so not sleeping well??
I am so sad tonight..I want so badly for Madie to develop...these seizures are just zapping her little brain and stealing all her sparkle...
Do I loose hope in Depakote?????
Calling the neuro tomorrow and saying god knows what..Ill improvise...
Sending big hugs to all our munchkins...
maybe it is time I found a little faith in my life...been a looooong time god...are u still there??

Teething, Eating, Seizures, Doctors and Holiday Partys!

Will this teething ever end? I'm really tired of using it as as excuse for Madison's lack of eating..she is so tired...and I dunno...she just grumps...like you think she is looking tired so I put her in bed..then she makes happy noises like she is completely awake...soooo take her out..and her eyes are sleepy..she grumps and wines...refuses to eat...
The real good moods come for sure but they don't last long..she is generally sleepy...chomping on her hands and the stinky drool that comes with it I just cant keep her clean...and when I do put any cream on her its drooled off in seconds...and I don't want her eating that stuff! Don't forget bedtime...after a day of so so naps she is not about to go to bed..springing to life and making super loud noises in her bed...grunting and screaming and shouting...and wining...
Seriously happiest sitting with me or laying down on her blanket or on the couch...
So in a nutshell....well......Seizures have been OK....some breakthrough ones I mentioned in the last post and one today.....I had to call the Neuro from the road on the way to Jersey on Friday since I heard nothing back on Thursday being new years day..... I literally called them from my hubbys cell phone while we were on the road to New Jersey! and they said to just remember to give her her meds at the same time each day....Since Christmas Eve we have been messing that up....ugh...WAY t too crazy! AND speaking of crazy....after driving 2 hours into the trip to New Jersey we realized we had forgotten her nighttime meds...!!.....we called two Jersey Targets with hopes of getting small doses just for the evening...well Depakote Liquid allllways has to be ordered so they had nothing...and clonopin was only at one.....GOSH...folks....
So after being told her meds need to be at the same time each day we were realizing she was going to get her meds at 11 when we got home instead of the usual 630...double ugh.

SO as you can see the chapped cheeks are bad....

Tylenol...well with her other meds...at times can make more vomiting...and we also realized that if she has nothing in her stomach with her meds she will vomit as well...sometimes its hard enough to get her to eat her bottles...

The food battle has been given up on for now...I am STILL standing by ever since we increased her Zonegran her appetite has gone downhill......BUT IM NO DOCTOR!

Its a force feed fest at times....and if she reeeealllly doesn't want her bottle she will vomit...there is no forcing the kid who is just not hungry.....

How many calories was that again per day??? UGH.....alllllot.

Neuro is saying that he is thinking that the drugs are working together to help her seizures....so no OK's to wien anything yet....

I will take madie for her blood work this week and we see the feeding team on the 15th....and Back to Neuro not till March......

Thank you for letting me do some venting tonight....Im SOOOO glad the holiday Parties are over!! whew. adios needle shedder....errrr pretty Christmas tree.....lol

Thinking of you all. :)

Easy on those Cheetos cami~girl..:) :)

Me.

A New Year...

Happy New Year~
As we all try to recover from our hangovers I will share with you a few pics...:) Me and Hubby at party...yeah so we were the youngest people there and the music was pretty bad but food and Family was great... Madie's Uncle Andrew watched her while we were gone.
What a year it has been....to say that this past year has not aged me 5 years would be an understatement for sure... Im pretty beat.
Madie has been doing real well with her seizures...we are upset to be brutally honest and tell you that she had a break thru seizure this AM...happy New years....back to seizures??? ugh.
I have left a message with the Nuero on call today and wait for the call back....*sigh* dunno folks..I just dont want the seizures to get real bad again...and they are creeping back....
Doesnt help that she is not feeling well...her rosey cheeks and her lack of appetite...can tell me one thing that she is teething her molars....

Madisons Auntie Jennica sent her a big box of great new clothes and this stuffed monkey....she was snoozing on the couch with all the blankets and he reached out to snuggle her new toy...ohhh that chapped little face,...I just dont know what to do....a warm bath and some cream on her cheeks is in order tonight for sure...sweetpea...
We have to go to Grandmas tonight for an early dinner and say bye to madie's Aunt Brenda who was visiting and is leaving on Sat....I am tired and not really in the mood but we see Aunt Brenda but twice a year! sooooo...
We ALllllllso head out to New Jersey tomorrow to see MY side of the family for the christmas party....whew.....and with madie just not herself....ugh..and mama TIRED...bedtime is early tonight I tell ya!
In other news...MORE SNOW In CT...to get all you southern folks jealous....I went out on my deck in my jammys and froze getting my picture...lol...
heres what thru the front windows looked like!! Brrrr!!
Yeah folks...I shoveled my entire driveway myself! I was awesome! It was cold and snowy! and I did it! hahaha

Behind me is to the left of our house what we call the swamp....all the black red winged birds come out in the summer and the chirper frogs go nuts in the spring! Our Grill cover blew off into there! hahaha its gross! We love it cause you cant build a house on it....only one neighboor on one side! Yesh I had just woken up....Im so glamorous!(new robe for xmas..:))

Keep Madie in your thoughts....ya know I was almost expecting them to come back....juuust like last year..eh? she has been sleeping most of the day...its almost 4! with one bottle......:(

*sigh*

keep on truckin.